It took approximately 15 years to convince doctors to drop the diagnosis of schizoaffective disorder from my file. It finally happened in 2023, but it was 15 years too late. What followed was another diagnosis that was equally upsetting for me (schizotypal personality disorder) until it was (apparently?) dropped as well. I have discussed this at length before, the subject is nothing new on this blog.
As I reflect on being classified with schizoaffective disorder, I am reminded of incidents where diagnosis is weaponized, or used as a means to control a difficult client so as to prescribe antipsychotics to keep them in line. I hear it happens in Russia, for example, but it also happened here in Toronto, at St. Michael's Hospital, when a patient who had lupus was diagnosed with schizophrenia so as to control her with forced medication, because apparently she was considered "difficult" - the doctor later admitted he was making symptoms up.
Perhaps not as damning as that scandal, I can't help but feel frustrated by the number of doctors I talked to who agreed that the complete lack of bipolar symptoms in my case made schizoaffective disorder a questionable interpretation, and yet none would fight for me. They also failed to consider the symptoms that were unusual that suggested that I was living with something else entirely. I was issued an EEG to rule out epilepsy (turns out those were spontaneous kriyas, not seizures, but try getting a doctor in Toronto to even know what a kriya is) - when they decided it couldn't be related to seizures, they shrugged off all mystery symptoms and chose to ignore them. The Jungian analyst I had got it, along with the rogue psychiatrist I once had who agreed that what I went through was all bullshit, but I guess I had to convince inpatient care doctors for anything to change.
But the damage in my relationship to medicine, as I have discussed before, was done. I was so put off by how things played out, I went on an extended hiatus to contemplate how to proceed with my image in the art world, after my name became synonymous with a disorder I simply did not have and was trying to protest. Now that I am Latuda free and not involved with psychiatry anymore, I am hoping that my new work, which is mostly related to the soul, will catch on somehow and promote the true story of what I was enduring = an ancient condition that can arise when someone is called to transform. This would all be so much easier if only the American Psychiatric Association would recognize such ancient conditions in a future edition of the DSM, because apparently labels matter more than true insight. I don't even expect anyone to take the possession component seriously in this city's wretched medical care system, but it would be a fine day in Toronto if they would at least recognize the existence of transformative psychology.
While some Mad Pride people are fine identifying with their diagnoses, many others feel as I do about how reductive these labels can be, so my frustrations are not out of the ordinary. Thankfully, with time, common sense in my case prevailed, and I finally got away from the white coats.
One day I will look at my psychiatric profile, perhaps out of morbid curiosity, but not today - it still feels too raw.
-Saraƒin